The Source

Entries categorized as ‘Stories’

The Power of Making a Decision

November 1, 2009 · Leave a Comment

Here’s an article I want to share with you from today’s Brainerd Dispatch - it’s titled “As a donor, Fred keeps on living.”  It’s a great story about a young man named Fred Powers who had too short a life and had made the generous decision to be an organ and tissue donor.  I encourage you to read the story in it’s entirety.

What I want to point out, however, is a short excerpt from the middle of the article:

A LifeSource representative approached Bonnie and Randy, asking if they’d be willing to donate Fred’s organs. Randy remembered several years earlier that Fred had asked his dad if he was an organ donor. Randy told his son that he was, and Fred seemed interested in doing the same. But nothing else was spoken between them on the issue and his parents weren’t sure if Fred had gone through and had “donor” listed on his driver’s license.

Randy sent one of Fred’s friends to the parking lot to retrieve Fred’s wallet from Randy’s truck. They were relieved when they turned Fred’s license over and it read “donor.”

“It took a huge pressure off of us,” said Randy.

It’s worth repeating Randy’s words – “It took a huge pressure off of us.”  This is the power of making a lifetime decision about donation. 

Please take a moment to get the facts about donation and make a decision, then let your family know.  Encourage them to do the same.  Nothing in the world can make the tragedy of losing a loved one easier, nor can donation take the sting away from the grief-filled months and years ahead.  Randy’s words reflect the relief, the comfort and the knowledge that they were supporting what Fred wanted.

Categories: Donor Families · Stories

The Great Minnesota Get Together: Day One

August 27, 2009 · Leave a Comment

The following post is courtesy of Cindy Thurmes, our special events coordinator:

For those of you that visited the fair on opening day, I’m sure you will agree it had to be the busiest day ever!

The parking lots and the fair itself were packed by late morning. We had so many amazing visitors stop by our booths in the Health Fair 11 and Education Buildings, but one in particular that I have to share the story of. That story belongs to Fay, who explained to me that she will be receiving a kidney from a stranger next Thursday.

Her story started last April when she returned home from her Dr’s office after an annual physical. Her doctor phoned her late in the evening and asked her and her husband to meet him at the hospital. When she arrived she was told that she was in kidney failure and they immediately started dialysis and put her on “the list.”

In July, she and her husband put their second vehicle up for sale to pay for their medical costs. A young woman came to look at the vehicle and asked why they were selling. Fay explained her medical condition to the 39 year old woman and the woman said she would like to donate her kidney to Fay. It was something she always wanted to do for someone. Miraculously, they were a match. Fay and her donor will be having dinner together Saturday evening and will check into the hospital Thursday morning for this life-saving gift. Fay promised to let me know how she is doing when she returns home.

We will be thinking about you and your donor Fay!

Day_1_of_State_Fair_041

The streets were bustling with fairgoers

The Clarks @ the Booth - Richard is a heart recipient

The Clarks @ the Booth - Richard is a heart recipient

Categories: Minnesota State Fair · Stories

Day 7 Sturgis

August 8, 2009 · Leave a Comment

 I arrived last evening to relieve my co-worker John of his duties in the booth at the Sturgis Bike Rally. It was my assumption that I would fine John tired and ready to ride out of town. In reality he was energized and eager to keep going. After arriving on the strip and experiencing the views of thousands of bikes and people (ask me about some of those later), John’s energy was passed along to me. I have to admit at first I was a little nervous about this adventure but was pleasantly surprised with the kindness of everyone here. One example of that was the generosity of over half of our booth visitors today. As we handed our green wrist bands out and were in the process of asking if they were donors, they would reach for their wallets to give us a cash donation. I have not experienced that anywhere I have gone before. These bikers have big hearts. Speaking of big hearts – I met Matt from St. Louis Missouri. Matt was approximately 13 years old. He came running to our booth with a big smile on his face and said; “I know exactly what this is about”. Matt’s mother told me he did a very large project on the lifesaving gifts of organ donation and takes every opportunity he gets to talk about it with family and friends. As he talked to me in excitement, other adults stood by to listen to what he had to say. Matt was an example of how important our high school education is.

Matt a great advocate for donation

Matt a great advocate for donation

 Lastly, John told me last night that Lorenzo Lamas was in a booth right outside of our door. For those of you that do not know him he was the star of the shows Falcon Crest and Renegade. My trip would not be complete without meeting him so I went on a search. I found him and was told he was selling t-shirts for the Make a Wish Foundation. After adding another t-shirt to my collection and having him sign a picture for me I went back to the booth. I decided to go back for more visit with the intention of talking with him about donation. I asked him if he was a supporter and his response was “absolutely, I cannot use my organs after death”. He proudly put the wrist band on and took a picture with our volunteer Kim. Yes, that made my day.

Lorenzo Lamas and Kim Morsching

Lorenzo Lamas and Kim Morsching

Until tomorrow – good night and thank you to all of our volunteers for making this outreach possible. Cindy

Categories: Donor Families · Sturgis

Sturgis Day 4 “My wife is waiting”

August 4, 2009 · 2 Comments

I talked with a guy this morning who was this huge mountain of a man. We started talking about donation and he mentioned that his wife was waiting for a kidney, she has been on clinic based dialysis for three years now. Her kidneys were destroyed when she was pregnant with their first child. She was very sick during the pregnancy and due to the high blood pressure her kidneys were destroyed. He talked about waiting and how hard it was to wait and that now with their 2 kids, (the second pregnancy went well) it is harder and harder to wait.  He told me that six of their family members have been tested and they are waiting on the seventh as a possibility.

As I stood there with him, I could see the pain and frustration in his eyes as he talked about having to wait and not being able to do anything about it. This was a man who obviously was very physically strong and listening to him talk he was smart and articulate but all he can depend on is someone willing to give the gift of life to his wife.

You can give that gift, make sure you have it on your license and tell your family that you want to be an organ and tissue donor.

Ride Safely,

John

Categories: Stories · Sturgis

A Hero in Life and Death

August 4, 2009 · Leave a Comment

This eloquently written post was authored by my colleague, Cindy Thurmes.  Cindy is LifeSource’s special events coordinator and took the time to share with all of us about a personal – and recent – connection to donation.   

As a special events planner at LifeSource, I have the privilege of working with many donor families and recipients through the events that I plan. No matter what our jobs are at LifeSource, we are driven by their stories, their tears and their strength. Sometimes the lifesaving gifts of donation come into our personal lives also. That is what I experienced last week.

On July, 18, 2009, my daughter’s friend Army Ranger Ben Kopp died from injuries he sustained in Afghanistan while protecting the lives of his 6 fellow soldiers.  Ben was a fun and adventurous individual in high school who would do anything for anyone. This carried over in his life as an Army ranger. Ben served several tours in Iraq and was assigned to Afghanastan in May.

On July 10th Ben’s unit was involved in a firefight with the Taliban where he put himself in the line of fire so that his fellow soldiers could get out of a location that they were backed into. Ben was shot in the knee which severed an artery and lead to his brain not receiving the oxygen it needed. Ben was cared for by medics in the field and then in a hospital in the middle east followed by a stop at Landstuhl Medical Center in Germany and finally the Walter Reed Medical Center in Washington D.C.  Ben also became a hero after death by becoming an organ donor. Miraculously, after saving 6 of his fellow solders lives, he saved 6 more lives through organ donation.

I had not been to a soldier’s funeral before and do have to say that the ceremony of it with a Blackhawk helicopter flying overhead,  hundreds of patriot guards standing by with flags, the stories from his fellow soldiers and commanders, and the sound of bagpipes in the air brought out emotions I did not know I had. What I did know was that Ben was clearly a hero in so many ways and his actions were contagious. I looked across the room Friday night at his visitation and Saturday at his funeral and saw all of the people with the green wrist bands on supporting donation. It occurred to me we may not be the hero Ben was as a soldier but we can all agree to be the hero Ben was after his death by saying yes to organ donation. Ben’s heroism and his family’s desire to see it through on his long journey home from across the world will always be an inspiration to me. 

Categories: Donor Families · Stories

Sturgis Day #1

August 2, 2009 · 2 Comments

We made it to the rally and have been talking to people from all over the world. We gave out over 500 wristbands and had many different conversations. It is amazing the amount of people that when asked if they were an organ donor said “Yes I am, don’t need them when I am gone.”

For the morning crew we had two of the South Dakota Lions members who did not rest in asking the question of  ”Are you a donor?” to those that happened to walk by. One of them named Bob, seemed to have his own gravitational pull for those who came near to him and every one walked away with a green wristband and knew what it meant. We also had Don and Christine who are the parents of Gabriel. Don donated one of his kidneys to Gabriel and now Gabriel is a 2 year old bundle of energy and doing quite well. Brandy Thompson from the South Dakota Lion’s Eye Bank also volunteered and took the message out into the streets handing out bracelets to folks as she passed by.

Paul and Christine and Brandy

Paul and Christine (recipient parents and living donor) along with Brandy Thompson from South Dakota Lions Eye Bank

In the afternoon Doug and Carol Pavel took over the booth and the wristbands started flying again. During the many different short conversations, laughter was heard and powerful moments were shared. As Doug and Carol shared their son Brian’s story and how he was a donor and ultimately how helpful it has been to them to know that people had received the gift of life out of such a tragic event. We stayed to the last moment to hand out as many wristbands and talk to just one more person.

Doug and Carol Pavel and myself  posing for a picture at the end of the shift

Doug and Carol Pavel and myself posing for a picture at the end of the shift

The grand experiment of coming out to Sturgis so far has been a success.

Ride safe,

John

Categories: Donor Families · Stories

The power of connections

July 8, 2009 · Leave a Comment

Last weekend I attended a wedding with my family.  At the reception we sat with another family who had small kids.  As we started to talk with with the required introductions – such as name, how do you know the couple and so on - we talked about what we do. I shared that I work for LifeSource, at which point Tabitha spoke up and told me that she was a donor sister and that her mother had received a lot of support from our organization.

Tabitha’s sister died more than 15 years ago and she spoke very passionately and powerfully about the support they received and the relationships that were created because of the gift of life. She spoke about meeting the parents of the recipients and how important it was to her mother to meet the mother of one of her sister’s recipients. She shared that they both had anxiety about the meeting, such as the recipient’s feeling of guilt of having a surviving child and so on.

As Tabitha continued to talk she gave example after example about how donation had changed her family’s life. I could see in her face how much it had impacted her and the excitement about talking to someone who understood the process and not having to explain it. It seemed that she may not have told these stories for a while and telling them to me was encouraging both of us. She talked about her family becoming family friends with the recipients and their families, even flying to visit one family by herself when she was 16.  She talked about keeping in contact with the donation coordinators and how that had impacted them.

Connections that are created by the generous giving of the gift of life are powerful, both for the donor’s family and the recipient’s.  Each side can gain healing from being in a relationship with the other, and families are connecting more often.  Around 10% of LifeSource donor families have direct contact with the recipients of their loved ones gifts; not too long ago it was rare and unheard of.  As we continue to talk with donor families, recipients and transplant professionals we can increase those numbers and there will be more stories shared over a meals at at receptions talking about the power of giving the gift of life and the connections it creates.

Categories: Donor Families · General Musings · Stories

Meet Kayla

July 2, 2009 · Leave a Comment

I had the pleasure of meeting Kayla a few months ago – a gracious young woman who received the gift of tissue donation to repair her torn ACL.  I think you should have the pleasure of meeting her as well. 

Categories: Stories · Transplant Recipients

After the donation: Continuing the legacy

June 2, 2009 · 1 Comment

This morning I was going through the mail at my desk when I opened a letter from a donor mom.  Enclosed was a program from a ceremony at which the donor’s family awarded the first of an annual scholarship in honor of their son.  As I looked through the newspaper clippings, the program, and read a copy of the speech, I was very impressed with their commitment to continuing the legacy of their son and their family.  This family is able to share the positive traits of their son with a much larger group on an annual basis as they give scholarships to high school students who will, hopefully, go on to pursue their dreams. 

Many times we talk about the gift of life given at the time of donation – the gift of organs or tissues that saves lives of those waiting for a transplant  And this is a critical message to share. Over 100,000 people are waiting for a life saving transplant and  that is just organ alone.  Many more people will require a tissue transplant at some point in their lives. 

To me, though, the amazing thing about our donor families is that they do not stop with the donation.  They do not say, “my family has given enough.”  Our donor families find ways to continue to give, to further the legacy of the beloved person that has died. This is done through a variety of ways: establishing scholarships, softball touranments, telling their story to high school students in driver’s ed. These are people that understand what it means to give – to give life, to give hope, to give possibilities.  I am constantly encouraged by knowing, caring for, and serving this group as they try to do the same for their community and continue the legacy of their loved one.

 

John LeMay

Categories: Donor Families · Uncategorized

Memorial Day Memories

May 29, 2009 · Leave a Comment

The following post is courtesy of Mark Johnson, one of our hospital liaisons, and is a testament to the generosity of donors and the power of remembrance. 

On Memorial Day a friend and I were checking in for a round of golf and one of the guys behind the counter asked me what my relationship was to LifeSource.  After explaining my role with the organization I asked him if he was a donor family member and he mentioned that his daughter had died in 1990 and was able to donate her heart and both kidneys.  He asked that I stop by after my round so we could talk a little longer.

During our conversation later in the morning he thanked me for what LifeSource does and told me that losing his daughter was the cruelest blow he and his wife have ever experienced.  He also mentioned that when they think about their daughter they rarely think about how she died but more frequently remember that she was able to help other people.  He said he doesn’t recall a lot of details about the hospitalization but clearly remembers the conversation about donation, and that he and his wife never hesitated to say yes knowing that their daughter would be an answer to another family’s prayer.

19 years later and he was obviously still deeply impacted by their decision to donate.  Talking with this father I realized that the donor families we have worked with in the past, whether it was last week or 19 years ago, are affected forever by their interactions with LifeSource.     

To meet a donor Dad from so many years ago and to have another chance to honor their decision and their daughter’s gift was a wonderful way to celebrate Memorial Day!

Categories: Donor Families · Stories